Our Curse

Our Curse

5.8

May 28 2013

0h 27m

Documentary

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.

Tomasz Śliwiński

Tomasz Śliwiński

Self

Magda Hueckel

Magda Hueckel

Self

Leo Hueckel-Śliwiński

Leo Hueckel-Śliwiński

Self